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URL: http://www.ox.ac.uk/news/2019-03-15-urgent-need-guidelines-communicate-children-about-life-threatening-conditions
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Title: Urgent need for guidelines to communicate with children about life threatening conditions | University of Oxford
Description: The global prevalence of life threatening conditions in children and parents makes it an urgent priority to develop child-focused communication guidelines for healthcare professionals to support families in their time of need.
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Texto: Urgent need for guidelines to communicate with children about life threatening conditions | University of Oxford Skip to main content Home Home Admissions Undergraduate Graduate Continuing education Research Divisions Research impact Libraries Innovation and Partnership Support for researchers Research in conversation Public Engagement with Research News & Events Events Science Blog Arts Blog Oxford and Brexit News releases for journalists Filming in Oxford Find An Expert About Organisation Facts and figures Oxford people Oxford Access International Oxford Building Our Future Jobs 牛津大学 Search News & Events Events Regular events in the University Year Race and the Curriculum Women of Achievement Science Blog Arts Blog Oxford and Brexit Latest University updates University to pay settlement fees for all EU staff EU referendum and Brexit: Analysis News releases for journalists Filming in Oxford Find An Expert Urgent need for guidelines to communicate with children about life threatening conditions Image credit: Shutterstock Published 15 Mar 2019 Share This Tweet Share on Facebook Share on LinkedIn Share on Reddit Home News Urgent need for guidelines to communicate with children about life threatening conditions Urgent need for guidelines to communicate with children about life threatening conditions Research Mental health The global prevalence of life threatening conditions in children and parents makes it an urgent priority to develop child-focused communication guidelines for healthcare professionals to support families in their time of need. Two new papers published in The Lancet , led by a team at the University of Oxford, highlight the importance of communicating with families about life threatening conditions in ways that can make a real difference to the traumatic circumstances in which families find themselves.  Professor Alan Stein, senior author and Child and Adolescent Psychiatrist, University of Oxford, said: 'This important Lancet series offers principles to guide conversations between health professionals, children and their parents about life threatening illness. There are huge time pressures on healthcare professionals and concerns about how to get it right for families.' One of the most daunting challenges that parents and healthcare professionals face is to tell a child that they or their parent has as a life threatening diagnosis. Parents would do almost anything to shield their child from distress, yet sometimes this can’t be avoided. Evidence shows that talking with children about illness helps with family relationships and wellbeing. Professor Stein continued: 'Having guidelines makes it possible for health care professionals with different experience and training in both high, and low and middle income countries, to initiate these critical conversations to provide effective communication with parents and children.' Sensitive communication and language tailored to the child’s age and understanding matters enormously to children and their families regardless of their life circumstances. Parents are understandably uncertain about how, when and what to tell their children about the condition and are fearful of the impact. Yet children are often aware that something is seriously wrong and want honest information. Clearly this will be different for a 6 year old or a 14 year old, so guidelines to enable these critical conversations and provide effective communication with parents and children is key. The series highlights that: - The moment that the diagnosis is conveyed is often remembered vividly for many years and signals the beginning of a new trajectory for the family.- When a child has a life threatening condition there are practical reasons why the child should know, for example, if they need to take medicine or cooperate with treatment.- For the family, being able to talk openly about a life-threatening condition allows them to better support one another and find the help they need.- When a parent has a life threatening condition children even at a young age notice changes at home and alterations in their parents’ behaviour.- Children want to know what is going on and in the absence of information they often ‘fill in the blanks’ by themselves to try and make sense of what they are seeing. This can sometimes be worse than reality, especially if the child believes they are responsible in some way.- These structured guidelines will enable healthcare professionals to successfully navigate this difficult and emotionally challenging task. The papers, 'Communication with Children and Adolescents about the Diagnosis of their own Life Threatening Condition and Communication with Children,' and 'Adolescents about the Diagnosis of a Life Threatening Condition in their Parent,' can be read in The Lancet. www.thelancet.com/series/communicating-with-children Latest Four Oxford academics become Fellows of the Academy of Social Sciences 22 Mar 2019 Gardens, Libraries and Museums commit to closer collaboration with University of Padua museums 22 Mar 2019 Royal Vision for Oxford University’s Southeast Asian Studies Centre 21 Mar 2019 Moralizing gods appear after, not before, the rise of social complexity, new research suggests 21 Mar 2019 Sleep and ageing: two sides of one coin? 21 Mar 2019 FURTHER INFORMATION Department of Psychiatry All news Share This Tweet Share on Facebook Share on LinkedIn Share on Reddit Connect with us iTunes Youtube Facebook Twitter LinkedIn Weibo Instagram Medium The Conversation Information About Oxford University Strategic plan Oxford's research Fees and funding Libraries Museums and collections Open days Oxford glossary Statement on Modern Slavery Data privacy / GDPR Sport at Oxford Conferences at Oxford 牛津大学 Information For Prospective undergraduates Prospective graduate students Prospective Continuing Education students Prospective online/distance learning students Current Oxford students Current Oxford staff Oxford residents/Community Visitors/Tourists Media Alumni Teachers Parliamentarians Businesses/Partnerships Quick Links Contact search Jobs and vacancies Term dates Map Nexus365 email Giving to Oxford Oxford University Images © University of Oxford 2019 Contact us About this site Legal Privacy policy Cookie statement


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